May 2013
1 post
May 26-June 1
We hope that everyone had a great week. We have been busy in the office. This week, we had volunteers from Key Bank come in to the Cleveland office and help us assemble packets and other lupus informational material. Our President and C.E.O, Suzanne Tierney also traveled to Lima, Ohio to inform and educate people about lupus. We have plenty of exciting events coming up this week, and hope you can...
March 2013
1 post
February 2013
1 post
October 2012
3 posts
WatchWhoopi Goldberg Raises Profile of Lupus on The View
Whoopi Goldberg, honoree at the Lupus Foundation of America’s New York City Butterfly Gala, continues to raise awareness of lupus on The View. Julian Lennon and S. Epatha Merkerson presented Goldberg with the 2012 National Public Awareness Award for her work to increase public awareness of issues touching the lives of women and children,...
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Dr. Gary Gilkeson Discusses Adult Stem Cell...
August 22, 2012 Dr. Gary Gilkeson has been investigating adult stem cell therapy with a grant from the Lupus Foundation of America, to find a new treatment for people with lupus who do not respond to standard treatment. Dr. Gilkeson’s research revolves around mesenchymal stem cells, unique adult stem cells with immunesuppressive properties that make them attractive as an adoptive cell...
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The Hill: Sequestration Cuts Could Seriously...
Federal sequestration cuts are expected to dramatically affect funding for all areas of health care research. But nowhere, perhaps, would the effect be more chilling than in the still-fledgling field of lupus research.
The automatic cuts would become effective January 2, 2013, unless Congress intervenes, and would sharply curtail the pipeline of research funds flowing to scientists through the...
September 2012
2 posts
1 tag
Walker of the Week : Cleveland
My name is Steffani. I am a daughter, a friend, a girlfriend, a nurse. I am a typical girl living in Cleveland, Ohio at the age of 24. I thought nothing could penetrate the safety of my world, as most young adults tend to imagine. Life, however, plays by its own terms, and a diagnosis of lupus came knocking when I least suspected it. What a birthday present - 23 years old and diagnosed...
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Cleveland : Walker of the Week
Walker of the Week : Jessica Tufts
Her Story In Her Own Words
When asked to share my story of why I signed up to walk in the Walk for Lupus Now community event, so many reasons came to mind. I am walking in support of two of my sorority sisters who are battling Lupus. One of the founders of my sorority, Nu Omega Psi Sorority, Inc. and my line sister have both been diagnosed with Lupus. I...
August 2012
3 posts
1 tag
Walker of the Week : Cleveland
My name is Courtney Clough and I was diagnosed with lupus in early 2004. My disease started off as cutaneous with some very mild systemic symptoms. I was immediately started on Plaquenil and had an allergic reaction to it. I was switched to Methotrexate which made me very sick and gave me bald spots. I tried to give the Methotrexate a chance, but I felt worse on it than I did without it. We...
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Walker of the Week : Cleveland
Theresa DuBroy : Her Story In Her Own Words
I am walking for Lupus because it is something I can “do”. My daughter, Kristen, 22, was recently diagnosed with Lupus. It took the doctors eight months to make the diagnoses. Watching my daughter fight through headaches, fatigue, chest pain, joint pain, in and out of the emergency room and many doctors telling her everything was “normal” was...
Walk For Lupus Now : Walking Tips and Fun Facts
Are you excited for the Walk For Lupus Now? We sure are! In light of our upcoming event, we wanted to inspire all who walk not to wait until the day of the event, but to start today! Walking regimens have innumerable benefits to you personally, as well as our society at large. We will posting benefits one by one on Facebook and Twitter, but below is the comprehensive list of our “Walk For...
July 2012
3 posts
1 tag
July Featured Walker : Cleveland
My name is Elizabeth Phalen, my family calls me Betsy. I am 47 years old and was diagnosed with Lupus 8 years ago, after about 10 years of misdiagnoses. I live in Cleveland Ohio. I am a proud single parent of a beautiful daughter who is a senior at Charleston Southern University, SC. Along with Lupus I have Asthma, Spinabifada, Raynauds disease, Hashimoto’s disease & Fibromyalgia just...
Annual Ice Cream Social!
We will be having our annual Ice Cream Social September 8 from 1-3pm! If you are not already committed to something, you should definitely come. We have an amazing speaker this year, Dr. Hojjati. She is both a Rheumatologist and an Immunologist. She will be talking about “Evolving Research at Cleveland Clinic.”
Not only will you be hearing from a very knowledgeable expert about the...
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The Lupus Foundation of America and the...
(Wednesday, July 11, 2012; Washington, DC) – Today, the Lupus Foundation of America (LFA), the leading voluntary health organization for people with lupus, convened on Capitol Hill with the Congressional Lupus Caucus and lupus community partners to share with our nation’s leaders the current state of lupus research. The Briefing included presentations from lupus experts as well as...
June 2012
5 posts
The Lupus Foundation of America Continues...
2012 Gina M. Finzi Memorial Student Fellowship Program Grantees Awarded
(Washington, DC) - The Lupus Foundation of America (LFA) is pleased to announce the 2012 Gina M. Finzi Memorial Student Fellowship Program grantees. This unique program, established more than 25 years ago by former LFA President Dr. Sergio Finzi in honor of his daughter Gina who passed away from lupus, seeks to...
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PDUFA Reauthorization is critical to millions of...
The Prescription Drug User Fee Act (PDUFA) authorizes the U.S. Food and Drug Administration (FDA) to collect an application fee, also known as user fees, from drug manufacturers when they submit an application for approval of a new drug. The law designates that user fees are only for use by the Center for Drug Evaluation and Research (CDER) or Center for Biologics Evaluation and Research(CBER) for...
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A Significant Step Forward in Improving the Care...
New guidelines help physicians screen, treat and manage adult lupus nephritis
The Lupus Foundation of America (LFA) is pleased to report that the American College of Rheumatology (ACR) has issued new guidelines for screening, treating, and managing lupus nephritis. The new guidelines, currently available on ACR’s Web site, will be published in the April 2012 issue of Arthritis Care &...
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Columbus : Walker of the Week
Tiffany Thiede
Hi My name is Tiffany. I was diagnosed with Lupus nephritis SLE in June of 2006. I had no idea what was wrong. I was very weak and had gained 30 lbs of water weight in about a month and really just had no idea what was happening. I was very lucky to be diagnosed fast, though. No one else in my family has it as far as I know, and I do come from a big family. I have a great doctor...
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Columbus : Walker of the Week
Melissa Mackey
My name is Melissa Mackey and I was diagnosed with lupus 22 years ago at the age of 13. I was originally diagnosed with mixed connective tissue disease, which is a combination of lupus, rheumatoid arthritis, and scleroderma; however, as I grew older and entered into my 20’s the lupus became quite more prevalent and I was diagnosed with lupus nephritis. As one can imagine, being...
May 2012
4 posts
1 tag
Tip of the Week: Get Into the Lead!
A little competition never hurt, so this week we’re letting everyone know who’s in the lead this week for fundraising. Did you know there’s a prize for the top fundraiser? Be sure to check out our FUNdraising ideas so you can pull into first!
Top Columbus
Fundraisers To Date:
#1. Paula Warner: $510.00
#2. Chantelle Gignac: $460.00
#3. Cheryl Ryan: $440.00
#4....
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World Lupus Day Highlights the Impact of Lupus on...
May 10 is World Lupus Day
(Washington, DC) In recognition of World Lupus Day, May 10, the Lupus Foundation of America (LFA) seeks to shine a light on the significant physical, emotional, and financial burden of lupus. As part of the observance, the LFA and lupus organizations around the globe are urging everyone to sign a pledge to increase awareness of lupus, a devastating and life-altering...
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Columbus : Walker of the Week
Christi Block : Her Story In Her Own Words
My name is Christi Block and I am walking for my 17 year old nephew, Tyler Sims. Tyler was diagnosed about a year ago after a few years of battling the unknown. Tyler has had so much taken from him because of Lupus and Antiphospholipid syndrome. I started team Simmer Supporters to help boost Tyler=E2=80=99s spirits and to show Tyler how much...
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Lupus Foundation of America Rings The Closing Bell...
May 10, 2012
Today, the Lupus Foundation of America (LFA) visited the New York Stock Exchange (NYSE) in honor of World Lupus Day, to raise awareness of the significant tremendous physical, emotional, and financial burden of the disease. To recognize this special occasion, Sandra C. Raymond, LFA President and CEO Fran Tsimoyianis, LFA National Board Member and Jonathan Corpina, Meridian...
April 2012
20 posts
Biomarkers In The News: April issue of...
The Lupus Foundation of America (LFA) is excited to see increased media attention surrounding lupus biomarkers, which are proteins, genes, and other markers found in the body that are useful for diagnosing a disease, measuring its activity, or measuring the effects of treatment. The April issue of Translational Research is dedicated to exploring the recent discoveries of biomarkers over the last...
Hollywood Phenom Maurissa Tancharoen Whedon Fights...
Spring Issue of Lupus Now® Magazine highlights how she found support through her all-star network of friends and family
(Washington, DC – Lupus Foundation of America)— Maurissa Tancharoen Whedon has done it all—actress, singer, dancer, and television writer and producer. The 36 year-old Hollywood phenom started out as a singer during her teen years for a Motown band, and has gone on to...
Lupus Awareness Month, You Can Get Involved!
Did you know that May is Lupus Awareness Month? We are so excited to join together as a united force to raise awareness for the entire month of May in lots of unique an fun ways! And, we can’t wait to see you rise up with us to inspire, comfort, and further our mission to one day find a cure for lupus. So, please join in any way you can! Thanks for you support!
Lupus Awareness Month...
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Tip of the Week: Get Into the Lead!
A little competition never hurt, so this week we’re letting everyone know who’s in the lead this week for fundraising. Did you know there’s a prize for the top fundraiser? Be sure to check out our FUNdraising ideas so you can pull into first!
Top Downtown Cincinnati
Fundraisers To Date:
#1. April Gulisano: $645.00
#2. Melissa Bell: $405.00
#3. Kelly...
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Cincinnati: Walker of the Week
Missy Bell : Her Story In Her Own Words
Hi, I am Missy 41 year old mom of 17 year old twins. I am known or labeled as many things: Daughter, Sister,Wife, Mom, Aunt, Cheer leading Coach, General Manager but being labeled as Lupus Patient was not one I was prepared for when I was diagnosed in March after a 2+ year battle with joint pain and poor health. I am familiar with Lupus because I...
1 tag
Tip of the Week: Get Into the Lead!
A little competition never hurt, so this week we’re letting everyone know who’s in the lead this week for fundraising. Did you know there’s a prize for the top fundraiser? Be sure to check out our FUNdraising ideas so you can pull into first!
Top Downtown Cincinnati Fundraisers To Date:
#1. April Gulisano: $645.00
#2. Kelly Kuehneman: $390.00
#3. Melissa Bell: $305.00
...
There's An App For That!
Do you have a smartphone? Do you want to stay up to date on all important information on walk day? We have a great solution for you : Download our FREE app!
It’s available on Apple and Android markets.
All you need to do is search for “Walk For Lupus Now GOC” in the app store and download!
It’s that easy!
We can’t wait to see you on walk day!
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Cincinnati : Walker of the Week
Michelle Goodridge : Her Story In Her Own Words
This will be my family’s second year in the Walk For Lupus. My daughter Brittney was diagnosed with lupus 3 years ago at only 16 years old. During the past three years she has battled this disease on many medications, missed a significant amount of school, had numerous doctor appointments, specialists, bloodwork each month...
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Northern Cincinnati / Dayton Walker of the Week
Carla Norris : Her story in her own words
My name is Carla Norris. I am 48 years old and was diagnosed with Lupus in 2008. My story is a lot like other lupus patients’ stories. I had been feeling poorly for years and years and was tested and tested, and told that there wasn’t anything wrong with me. Sound familiar? I finally started seeing a new family doctor and she...
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Cleveland: April's Featured Walker
Michele Casto : Her Story in Her Own Words
My story is similar to many other Lupus patients I have met. I spent years being misdiagnosed, dismissed and desperate for answers. Unfortunately, I missed out on treatment in those early years. Having Lupus does not only affect the individual, but also everyone who is involved in their life. Every day is upredictable because of the uncertainty...
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Columbus: April's Featured Walker
Paula Warner : Her Story In Her Own Words
My daughter was 8yrs. old when the symptoms began. Foot pain, body aches and a rash across the bridge of her nose. Overseas, they did not see any problems with these symptoms, but when we returned to Columbus Ohio she had a major symptom. The skin on her face started peeling and her face became raw because of being in the sun. I took her to...
1 tag
Tip of the Week
Best Way To Get Involved? Join our Online Community!
So you want to be more involved… great! We want to hear from you! The best way you can get involved in the conversation at the Lupus Foundation of America, Greater Ohio Chapter is to find us on Facebook, follow us on Twitter, find us on Pinterest, and read our articles on Tumblr. Just click on the above highlighted links to find all of...
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Tip of the Week: Get your team on the same page!
Organizing your team for walk day will help immensely. It can be difficult to find everyone, make sure you’re all in the right place at the right time, and all registered and receiving the right prizes.
Remember, there is limited parking, so organizing a car pool will be helpful to ensure there’s space for your whole team.
Also, be sure to eat a good breakfast before you come...
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Tip of the Week: Show your team spirit, make...
The walkers who seem to have the most fun are the ones who dress for the occasion. How much more festive can you get than matching team t-shirts? We say, there is none. So, get together as a team sometime soon and make your most colorful, sparkly, FUN t-shirts possible. Be sure to have lots of fun with it, too!
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Cincinnati Walker of the Week!
April Gulisano
Her Story In Her Own Words:
My name is April Gulisano. I am a 38 year old Registered Nurse. I was diagnosed with SLE on January 2, 2010. Happy New Year! I struggled to come to terms with having a disease that could at any given moment take my life. It seemed so unfair at times. I remember those first few months how alone and afraid I felt. I just wanted to find peace. I felt like...
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Northern Cincinnati / Dayton Walker of the Week
Northern Cincinnati / Dayton Walk For Lupus Now Walker of the Week: Nina Roberts Here’s her story: “I walk for Lupus to raise money for education and research to find a cause and cure. I walk for Lupus in support of my sister Nikki Roberts Glenn and my 4H advisor Bev Mckeever. I have watched both of these wonderful women struggle with Lupus on a daily basis. I have met many Lupus...
1 tag
Tip of the Week: Get in the Lead!
A little competition never hurt, so this week we’re letting everyone know who’s in the lead this week for fundraising. Did you know there’s a prize for the top fundraiser? Be sure to check out our FUNdraising ideas so you can pull into first!
Top Northern Cincinnati / Dayton Fundraisers To Date:
#1. Theresa Corr: $1,165.00
#2. Nina Roberts: $500.00
#3. Kristen Fisher:...
Lupus Foundation of America Addresses Lupus...
March 20, 2012
(Washington, DC) On Tuesday, March 20, Human Genome Sciences and GlaxoSmithKline released the results of a new survey highlighting a communication gap between people with lupus and the people who care for and about them. The Lupus Foundation of America (LFA) President and Chief Executive Officer, Sandra C. Raymond, issued the following statement regarding the survey results:...
March 2012
7 posts
1 tag
Best Way To Enjoy The Walk, Invite A Friend
If you haven’t already, invite a friend to join you at the walk. No one likes to go to events alone, so be sure to let your friends know how fun the walk will be. They will be so excited, they won’t be able to keep themselves from joining you! The registration fee is just $20, and, as always, the proceeds will benefit the cause! So, as your excitement builds for the walk, be sure to...
Helping Hands Roles are redefined when you become...
By Amy Paturel, M.S., M.P.H. For as long as Jennifer Castro can remember, she and her mom, Rebecca Utley, were best pals. Pregnant at just 17, Rebecca raised Jennifer on her own, and in a way, the two grew up together. In fact, for as long as Castro can remember, “It was just Mom and me.” When Castro was 23, her mom began experiencing skin rashes, headaches, sun sensitivity, and fatigue, and was...
Lupus Research Podcasts →
Did you know you can listen to podcasts with leading lupus researchers? Well, you can. The Lupus Foundation of America has launched a podcast series of interviews from leading lupus researchers and other thought leaders in the field recorded during the 2011 American College of Rheumatology (ACR) Annual Scientific Meeting in Chicago, Illinois. Follow the link to check them out.
Exercising with Lupus
“Just like everyone else, people with lupus need to exercise regularly or engage in some kind of movement, and most people with lupus can take part in some form of activity. All exercise plans should be discussed with your physician or exercise specialist in order to maximize results and minimize possible harm.
Activities such as walking, swimming, bicycling, low-impact aerobics, certain...
Actor, Comedian, and Musician Nick Cannon...
March 05, 2012
During an appearance on ABC-TV’s Good Morning America, actor, comedian, and musician Nick Cannon announced that he has lupus-related kidney disease, called lupus nephritis.
Lupus is a disease that can affect any organ system and kidney involvement is one of the most serious manifestations of the disease. By publicly discussing a very personal health issue, Nick Cannon is...
Nick Cannon was Diagnosed with Lupus →
