We are non-profit, mostly voluntary health organization dedicate to raising public awareness , educating and supporting those affected by lupus, finding a cure, educating health care professionals, and promoting, encouraging and providing funds for Lupus research.
Paula Warner : Her Story In Her Own Words
My daughter was 8yrs. old when the symptoms began. Foot pain, body aches and a rash across the bridge of her nose. Overseas, they did not see any problems with these symptoms, but when we returned to Columbus Ohio she had a major symptom. The skin on her face started peeling and her face became raw because of being in the sun. I took her to the Children’s Hospital emergency room and a doctor in the Rheumatology department took care of her and later that week told me my daughter had systemic and discoid lupus. I started studying this disease in every area and learned a great deal about the symptoms, treatments and how to live with lupus, physically and emotionally. Between hospital stays, immune therapy drugs, and steroids she has triumphed through. She is still on several medications and in trial programs, but she is living as normal of a life as possible and so am I. My daughter was diagnose with TTP in 2009 and required several blood transfusions, due to the ”lupus”.
